T didn’t want to get out of bed this morning. It’s not like him at all.
Last night he emerged at 10pm out of bed and came downstairs. This is not like him at all – he usually sleeps soundly right through the night.
Yesterday he refused to remove his back brace when requested preferring to keep it on all day even at a party – when we usually allow him to take it off for a short while. Not him at all.
What’s going on?
Well his back brace has been rubbing his hip making it sore. He knew it was bad and didn’t want to see or face the sore hip that he preferred to leave the brace in place even though it was hurting him. The pain must have been bad that it woke him in the night.
We realised that his hip must be bad that we needed to remove the brace before he went back to bed. He didn’t want this and cried and refused. He had to physically restrain him to remove it. It was quite a task as he is getting very big and strong.
What we found was a weeping wet sore. Poor little man. It must have been agony.
T is afraid of anything that he considers medical so he refuses dressings, elastoplasts (band aid), bandages, creams etc. it freaks him out. So putting a dressing on it is not an option *. So we had to just let him put his pyjamas over the top of it and hope it would dry out overnight. It has dried out but it looks very sore – from what we can see. He won’t let us look at it. He is very aware of his sore hip and wants nothing to do with it that he was refusing to go to the toilet this morning as that would require him to remove his pyjamas. He was very upset when we said he needed to go before he got ready for school. He was sobbing, refusing cuddles and extremely anxious. It breaks my heart to see him like this.
He has gone off to school now but I am concerned how he will be about toileting there. Hopefully school will take his mind off it and he’ll be ok. He also has after school swim club but I am expecting him not to attend this evening because of the issue of getting changed. We will have to see.
So we have the dilemma of him wearing he back brace to prevent his scoliosis curve getting worse or not wearing it and the curve getting worse resulting in major spinal surgery. I feel like we can’t win at the moment. My baby is hurting and anxious and I want to make it just all go away so I can have the happy go lucky T back.
I am waiting for the clock to reach 9am this morning so I can ring the Orthotist to see what we should do about the brace. Only 13 minutes to go.
* we have in the past put a dressing on his hip while he sleeps but this ended up him refusing to go swimming last week because he spotting the dressing. He was so upset he was sobbing in the changing rooms that I just had to take him home again.